For the last week I’ve been consumed with anxiety. It’s been on my mind and probably most of your minds, too. CORONAVIRUS.
Partially I’m worried for myself, as being a cancer survivor and recent recipient of a stem cell transplant puts me at a high risk for serious illness if I were to contract COVID-19. And when our healthcare system becomes overly taxed, which is inevitable, will I still be able to get my routine oncology care? What if, God forbid, my cancer were to relapse this year (which is unfortunately the period of highest risk for me), would my doctors be too preoccupied with their other patients to take care of me?
But much more than I’ve been worried about myself, I’ve been worried about all of us—about society as a whole. At first I was hopeful—maybe the pandemic could bring us together? Maybe it could instill in us a sense of community and camaraderie and common purpose, like during wartime or an alien invasion (according to every action movie I’ve ever seen)?
The problem, though, is that pandemics historically have not brought people together. When the enemy is a virus, it could be anywhere, or in anyone. The doubt and mistrust can infect every part of us, including our moral code. There has been a lack of clear leadership and no singular voice guiding us how to conduct ourselves when our individual desires may be at odds with society’s needs. In that vacuum some of our base instincts have taken hold.
I see the mistrust and suspicion seeping through on social media, first with the dismissive posts criticizing others for worrying. “It’s just like the flu, guys.” “You’re overreacting,” “Just wash your hands and you’ll be fine.” In the last few days that tone flipped rapidly toward somber as most people have started taking it seriously. But then the anger came out. “Stop going to the gym, guys!” “You’re being so selfish!” “What’s wrong with people?”
It’s happened with my own family. When the news started turning I called my parents to see how they were holding up and was alarmed to hear they weren’t reconsidering their vacation to Hawaii next month. “It’s no big deal, honey. We’ve seen it all” (as I desperately tried to convince them otherwise, I had a sudden sympathy for how they must have felt trying to get me not to do dumb stuff as a teenager).
Otherwise normal people are hoarding food and toilet paper. First time gun purchases are up. This guy stripped a state’s worth of Purell from mom & pop shops so he could gouge customers by reselling it on Amazon at a massive profit. Suddenly every person around us is a potential enemy: Did she just cough? Is he buying all of the spaghetti? Why is he posting a photo at the gym? That’s so irresponsible! Won’t she just stop worrying and get off my back already? It’s not that big of a deal!
Let me backtrack for a moment with a brief story. A few weeks ago I wrote my first blog update in a while describing how I’ve been recovering from my stem cell transplant over the last few months. I wrote about how strict my husband has been about making sure I follow the anti-infection protocols at home to keep myself safe and protect my baby immune system and I jokingly used the term “Nazi” to describe him.
As I wrote the words there was a whisper in the back of my mind that someone might be offended by the joke, but I was tired and it was too much creative effort for me to come up with another phrase that packed the same punch I was looking for. For better or worse, when you’re an adopted half-Moroccan cancer survivor raised Jewish married to a half Ashkenazi half Persian Jew you feel entitled to make a lot of jokes.
Out of the 10,000 or so people who subscribe to my newsletter I received three replies from people bothered by the reference. The first person was quite harsh and called me abhorrent, among other things. That reply went straight into the trash, although it did give me minor stomach pains because it caught me off guard and no one likes to be on the receiving end of meanness from a stranger.
The second reply wasn’t unkind at all and was in fact otherwise complimentary but the level of offense felt a little dramatic, like I had done something terribly wrong. I emailed her back. Wasn’t “Soup Nazi” from Seinfeld funny? What about that recent Curb Your Enthusiasm episode with the antisemitic dog that only heels at “Heil Hitler”? She replied that she didn’t think Soup Nazi was funny at all, and I thought that was fair, because at least that was consistent. I disagreed but I understood her point.
It was the third reply, though, that made me realize I was wrong. It was so simple. It just took me a sentence to understand. She just described how she used to use the term “Nazi” as a joke, too, until her German immigrant husband explained to her why it was hurtful, especially for people living where it all had happened. She nicely pointed out that my (German) stem cell donor could be hurt by it, too.
Well, how much more obvious do I need it to be? I may be slow, but I’m not dumb. Of course I didn’t want to hurt anyone. The first two replies just made me think I had offended someone, which I’ve found is quite impossible to avoid when you have more than 10 people reading your stuff online. But hurting someone? Now I got it. I mean, I’m not a monster. That’s the last time I’ll ever make that joke again.
What a gift, isn’t it? To help change someone’s mind, to patiently guide them toward being a better person? To share your own story of growth, as she did, to help another person see it’s possible for them, too? I was open to this woman’s point of view because own self-reflectiveness made her credible. If we want to have the capacity to change a person’s mind, and therefore their behavior, we have to set the example first; we have to be the kind of person who is willing to change our own. Perhaps there are many ways to be persuasive, but the only one I know is to lead with humility.
I generally don’t try to change anyone’s mind about anything, except my patients, who are explicitly paying me to do so. It usually feels like an exercise in futility and an inefficient use of my limited mental and emotional energy. Believe it or not I am not a very outspoken person—my husband lovingly referred to me as a “mute” for a while because of how little I talk in group settings. I guess being a better listener than talker is what makes me predisposed to being a psychiatrist.
But I’ve started to feel differently now in light of the crisis we’re facing; the experience of having my own mind changed has shown me that to put that effort toward another person is a sign of respect; it is a gift through which we can demonstrate our love. We are currently experiencing a crisis and we are obligated to help those who need guidance.
I was still ambivalent about this post, though, until last night. My husband and I ordered PF Chang’s for dinner, and over Mongolian Beef and hot & sour soup I vented my anxieties about having a public voice about something in current events. I finished eating and opened my fortune cookie. It read: Others will follow your lead in the coming months.
Fuck. It’s on. Let’s do this.
There are basics we all need to know and follow: To start, follow guidelines on social distancing, not just for yourself but for the community. We need to flatten the curve, spreading out the infections over time so the healthcare system is not overwhelmed with a bunch of sick people all at once (we don’t have enough ICU beds or ventilators for all the people who will need them). Young people need to participate, too— while they generally don’t get sick they are likely the biggest spreaders of the virus, since they are the most active.
Don’t hoard toilet paper or food—the supply chains are fine, the issue is that everyone got scared at once and bought more than they needed. Care about yourself and your family, but don’t forget about your community or society as a whole.
Keep abreast of the news and CDC guidelines as the situation is evolving daily. Run errands for people who are elderly or immunocompromised. Remember that the people who will be most affected economically are those at the margins of society. Give your cleaner the time off, but pay her anyway. Tip your delivery person 10% more than you usually do. Be 10% nicer than you normally are, especially on the internet. If you have money, share it. If you have time, share it. If you have social support, share it. Sublimate your fears into action.
Whatever action you’re considering, envision that it’s not just you taking it, but everyone. Would the the result make the world a better place, or a worse one? This is an opportunity for us to support our families, our friends, our neighbors, or communities, and society as a whole. It is an opportunity for us to give help and also receive it. It is an opportunity to set an example for others by how we act.
Be patient with others as they get up to speed. Teach others without criticism or condescension. Lecture others 10% less; act 10% less superior. Be gentle when you tell someone they can’t visit or you can’t hug them. None of us wants to hurt anyone. We all want to be good people.
What we are all facing right now is scary and uncertain. It’s going to get worse before it gets better. Some will die, and many will suffer. There will be loneliness, grief, anger, and economic stress. It is a crisis. And a crisis is a chance for us to let our actions be guided by love—to become the people we have always believed and hoped we are.
I don’t know about you, but when I was a child I indulged in more than a few adolescent fantasies about what an amazing person I’d be if only given the opportunity—like I definitely would have been sitting with Rosa Parks in the back of the bus and hiding Jews in my attic during World War II. Well, now’s my chance. It’s all of our chances!
Sometimes a catastrophe is easier to handle than a minor inconvenience, and I speak from experience as a two-time cancer survivor. The stress of a minor inconvenience can be indulged, every aggravation played out in our minds, every annoyance yielded to—whereas the reality of a catastrophe demands action. It’s a make-or-break moment for all of us to discover who we are inside.
Love is not just a noun, it is a verb—it is an act. It is what you do. It is an energy that, once created, can never be destroyed, but is instead set forth into the universe in perpetual motion, where it will exist for all of us, always.
Moira says
Thank you for this. Take care, you!
Susan Barbaro says
Thanks, as always
Patricia Luboff says
That was beautifully written. Thank you.
Elanna says
This is the sanest thing I have read in three weeks. THANK YOU ELANA!
I have been a student of leadership for most of my adult life and I couldn’t agree with you more. Leaders act from a place of love and genuine concern. Leaders act (verb) rather than just talk about acting. Leaders model the way – they lead by example. We can all leaders.
You are most definitely a leader.
Thank you for sharing your wisdom.
May you be well. May you be free from fear. May you have peace and happiness.
Melissa Stalcup says
Virtual applause!
Judith Elise Alban says
Thank you for sharing this!
Barbara says
Thank you Elana for the timely reminder that we all have the capacity to “step up our game” as compassionate human beings. We always have a choice as to how we are going to respond in every situation , whether we’re aware of it or not. “Mindful” is a term we hear a lot of these days , but it might be a good idea to remember that each of our actions (hopefully kind and generous ones!) will have a ripple effect as its energy moves outward and onward …. “kind and generous” , I think, tends to beget more of the same.
Terry says
Thank You. From fear to love and action.
Val says
You might find this interesting. I take Plaquinil, and I know I have very few colds, and they are very mild since being on this med.
There’s another article in Axios today that Bayer Pharmaceuticals is donating the drug to the US
https://docs.google.com/document/d/e/2PACX-1vTi-g18ftNZUMRAj2SwRPodtscFio7bJ7GdNgbJAGbdfF67WuRJB3ZsidgpidB2eocFHAVjIL-7deJ7/pub
https://www.axios.com/scoop-bayer-to-donate-potential-coronavirus-drug-to-us-cc8c1a5a-6a14-4e36-8b07-07eccf4eff36.html?utm_source=facebook&utm_medium=social&utm_campaign=organic&utm_content=1100
wanda frank says
Most of the disturbing behavior mentioned is a result of fear, uncertainty, a lack of faith/trust in self or others, or Higher Power. How much easier to criticize poor adaptations when a lifetime of learning is needed to cope with such feelings.
jennifer warner says
I’m so glad you didn’t censor yourself; it was a thoughtful, philosophical piece. You’re an amazing writer. Thank you.
SUSAN DIAZ says
With your permission, I would love to post the last paragraph of your story – a perfect definition of love in action.
I’ve been following you since your first diagnosis & wish you well as we all face this difficult time. Your thoughtful essays have helped me in responding to friends who are going through cancer & relapses. I’m so happy to continue to hear news from you.
Elana says
Yes, feel free to share wherever you’d like!
Carey says
Others are following your lead NOW. Way to lead by example! You are an inspiring leader! Keep doing what you do best…writing, living your best life and making a difference in this world!
🌻Be well.🌻
Thanh Uyen Le says
That was a great article!!!!! Thanks for creating it from your heart.
Jonathan Terry says
When I saw your email come through today, I couldn’t wait to get done with work so I could sit and give it the full attention and listening it deserves. Your updates mean so much at so many levels, and this is no exception. I’m so grateful to be a part of your community, especially in this time of crisis. Please keep the updates coming.
Michelle D says
Thank you for sanity, I think you are an awesome writer.
Am I allowed to ask, how is your health?
Be safe and healed and healthy.
I’m still fighting the cancer battle because of you….:)
Cheryl says
Wow. Suddenly my whole being softened.
Lori Norris says
Wow, I cannot believe the timing on finding your post here. I was just about to lose my cool and harshly “lecture” some younger family members about their lack of responsibility to “socially distance” and quit being so damn selfish right now. You’ve helped me see a better way to win them over. Which will be a win-win for us all…This may be your best post ever. Continued good health to you Elana, we need thought leaders like you in this crazy world.
Cheryl Birchard says
Thank you for sharing this. I am having allergies and everytime I sneeze or blow my nose I think that people might think that I am contagious, like a leper.
Cheryl says
I am struggling with social distancing. I want to hug my friends! It is like I can only hope that when I bow to them from a distance they will understand that is a loving gesture.
tiana says
I signed up for your emails 7 years ago, and in the duration of emails I have received from you over the years, I would just like to say that I am so proud of you. I think you have a very realistic viewpoint, and it’s always so refreshing to read your posts. You have definitely impacted my life, and while I am only in my mid-twenties, I can confidently say that you have always challenged me to think on a deeper level. Thank you for your words of wisdom, and I wish you the best during these times.
Nancy Osman says
an amazing and beautiful article! Thanks for keeping us all more sane!
Linda M Shaw says
This was a lovely, well thought out article and just what I needed. Your words at the end were just what I/we needed to hear. I seem to be ending all of my phone calls these days with “be well”, “be safe”, and occasionally out of habit I say to even the receptionist at my father’s assisted living “love you.” At first I was embarrassed by what felt like a mistake, but love and compassion is never a mistake. Be well and be safe Elana, love you!
Brenda says
Amen re social responsibility! Ottawa, Canada
debra james says
finally a voice of reason <3
Genie Canales says
Dear Elena,
Your courage and humility inspire me. Thank you for sharing your “Nazi” story.
Thank you
Janet says
Thank you for offering your wise insight; as always, you are an inspiration. May we all be well, and find ways to remain spiritually connected while being physically distant. And may we all find ways to be better human beings. 💗